Two weeks before Magnus was diagnosed with nystagmus, Kerstin and I had a friendly chat with a blind woman in the ocularist's waiting room. She was young and beautiful, accompanied by a black lab guide dog, and her story still amazes me. Blind from birth, she grew up in a small farm town in Indiana. After finishing high school she realized there wasn't much her town had to offer, so she moved away for college and finally ended up in Arlington to do a Masters degree at George Mason University. Her specialty is in Human Capitol, requiring air travel 3 out of 5 days of the week. If that still doesn't impress you, she's married and owns a home in one of Arlington's most spricey neighborhoods. I know what you're thinking, "Damn, Ellie is such a snoop!" But we learned all of this after giving her a ride home (a full 30 minutes) AND she seemed happy to share her experiences and advice for raising children with visual impairments. So when the news came that Magnus' vision was worse than we expected, I took comfort in her story and knew that Magnus too, would be OK.
Weeks later though I started to feel down again. I worried (and still do) about his inability to drive, employment limitations, and social awkwardness (it'll be really hard for him to make eye contact). Then I read a story in People magazine that hit me like a brick. One of the members of the Black Eyed Peas is legally blind because of nystagmus.
Apl.de.ap's story also touched me because he's from a part of the Philippines where I spent part of my early childhood, Angeles City. You can read the story for yourself, but here it is in a nutshell: He was born to, then abandoned by his American father. Adopted through the Pearl S. Buck Foundation, in part because of his visual impairment, he went on to form the Black Eyed Peas with will.i.am. Now he DJs, dances, and performs in front of millions without much sight. Amazing. I think back to my childhood and remember driving past impoverished children on the way to my school on Clark Air Force Base. They sold chewing gum and newspapers in intersections and I always wondered why they weren't in school. Did I ever drive by apl.de.ap on the way to school? Looking back and comparing my upbringing to his, I lived a privileged childhood. Either way, if he could overcome both poverty and low vision to fulfill his dream of making and performing music, I gotta feeling that things will be more than alright for Magnus.
I believe that if he dreams and works hard enough, things will be downright amazing.

I just wanted to share another example... I've had the pleasure of teaching a student who also has a visual impairment. While I don't know his exact diagnosis, I do know that he has had several surgeries over his life and the results of the last one found he will lose his right eye soon. Yes, there are things he has to accommodate for – he has to sit in the front of the class, isn’t necessarily the best in PE classes, and is quite light sensitive requiring a hat while in the sun, but all of those things are solely superficial. He is amazingly brilliant with the highest test scores in the school, can take apart a computer and put it back together in his sleep, and has a personality that lights up any room. He doesn’t define himself by his impairment and his classmates and friends don’t even notice it. I look forward to hearing about all the wonderful things my student and also Magnus will accomplish in the future.
ReplyDeleteDanielle (Foreman) DeJong
follow '98 Trojan :-)
Sorry, I meant "fellow" not "follow" '98 Trojan. Opps!
ReplyDeleteHaving parents that see those possibilities and believe in those abilities will surely make it that much more a sure thing that he will dream big and achieve big. Plus a kid that cute can't possibly have any social problems other than too many girls fighting over him.
ReplyDeleteI'm a firm believer that things in life happen for a reason. Who knows why Magnus was given this challenge so early life? Maybe it is because he has some inner mettle to surmount adversity and be a lesson to others around him? I can't wait to see what great things he'll achieve in his lifetime. I think he'll live up to his name! Look at the story of Erik Weihenmayer: http://en.wikipedia.org/wiki/Erik_Weihenmayer. He summited Everest and all the other 7 summits, is a marathon runner, ice and rock climber, sky diver, skier. That might be Magnus someday!
ReplyDeleteThanks for all of your support guys, it means a lot to us.
ReplyDeleteSo glad I found your blog. It was great meeting you and your darling boys at the park.
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